I'm not sure how many people have been in the same situation as me, but have you ever felt alone? I'm sure you have at one point in your life. I mean really alone. In the same room with a lot of people having a great time, yet feel like you're all alone. If you have read my previous blog on my medical conditions then you will know some things about me and that I have Arnold Chiari Malformation. Look at me, well I know you can't. I mean take a look at my picture. I don't look sick or like I have anything wrong from the picture. It's really annoying some days, because that makes me feel alone. I can honestly say that I feel like crap daily. Each day is just a different level of how bad I feel. Some days I get up and do nothing and I mean nothing. I'm lucky I remember to take my medicine the bazillion I'm on. Other days I get up and I want to do the dishes or laundry or anything I can just to feel useful. Woo, lets go to the mall, go shopping something. Oh boy, for most women, that is an awesome thing. Oh don't get me wrong. I love to shop. Its the walking for a long time that I can do without or the sitting or the long day. Its the whole thing all together. I have to save all my energy from the entire week just to go shopping with my kids one afternoon, because I will be home sleep extra and hurt more, be tired and be so worn out the next day. It takes me 2-3 days to recover just from shopping it drives me insane. So I don't do it. And remember Arnold Chiari Malformation is only one of the many illness I have.
Trying to accomplish regular tasks at home is forget it. Overexerting myself is just about everything I do and I pay for it the next few days. I will go out and dance with my friends, but I take Tylenol before going because I have to on top of everything else and again I am just sitting or lying in bed for the next 2 days because I am in pain. I am throbbing, My neck and head is built up with so much pressure it feels like I was ran over by a truck. I feel so alone, why did this happen to me? Some days I wish that everyone could just experience this for a month, not a day, a month. Then maybe when people look at me and say, "you look great, you seem fine". Yeah, ok. I wish I only felt half as good as I look then at least i could do so much more. I feel useless some days, alone, confined. Other days I feel as if I were given life another chance and something precious like a gift.
I don't have any mental issues, yeah anxiety, who wouldn't with all the medical problems I have, but thats it. I'm not depressed or anything like that. I just need to vent thats why I made this blog and I want to get my thoughts and stories about my life out. Maybe it will help someone, somewhere. I am a strong woman, independent for which my mother taught me to be and I am grateful to have such a wonderful mother. I have two awesome sisters and a great brother too and for that again I am truly thankful. My 2 gorgeous daughters and 3 pain in the butt dogs (aren't they all) fill my life with joy and make me part of the woman that I am. But having so many illnesses I always will feel so alone like I was hand-picked to endure all this pain and continue my life this way. Alone in the sense that there is no one like me and not alone in the sense that I have no one around me.
This is why I know there are many people who feel they are alone in a crowd, but just remember you're not alone, but you are one. One special person, just like me.
I just write what's in my head. These days I can say I feel the best that I've felt in a long time. Right now I'm working on a book. I have Arnold Chiari Malformation along with several others which is a rare condition that hinders me from doing normal everyday activities. Live, laugh and love!!
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